Welcome to the website for the UK National Collaborative Study on Lysosomal Storage Disorders

This site contains information about the Lysosomal Storage Disorders Study, a long term study taking place in England, looking at the natural history and progression and at the treatment options for this group of conditions.

The purpose of this website is to tell you about the study, what information we are collecting, who we are and why we are doing this.

There are also links to the websites for UK based patient groups. However, please note that this site does not contain medical information or advice about diagnosis, symptoms or treatment options that might be available to LSD patients.